Patient hub
Welcome to the Patient Hub, your dedicated resource for information, support, and guidance tailored for individuals living with Sickle Cell Anaemia and related conditions.
This hub offers a range of helpful resources to support your journey, from practical tools in our Patient Resources section and essential advice in the Citizens Advice Bureau guidance to community aid information through West London Food Banks. Gain insight from others’ journeys in Personal Experiences and Patient Voices for Sickle Cell Anaemia, discover tips for safe travel in our Travel Guides, and explore ways to save on medications through the Prescription Savings Campaign. For more support, our Useful Links provide easy access to additional trusted resources. Dive in to find guidance, inspiration, and community.
Essential resources and patient support
Health and wellbeing resources
In-depth information on treatments, pain management, sexual health, Covid-19, and travel guidance.
Citizens Advice guidance
Advice for patients within the West London Haemoglobinopathy region.
Accessing benefits
Discover the benefits and support offered by the UK government and local councils for individuals affected by Sickle Cell, Thalassaemia, and rare anaemias.
Personal experiences
Explore videos featuring people from around the world as they share their journeys and insights on managing life with a red blood cell disorder.
Travel guides
Essential advice to help you prepare and ensure your travel plans go smoothly.
Prescription savings campaign
Find out about the prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme.
Useful links
Links to support networks, information, and activities related to Sickle Cell and Thalassaemia.
Patient voices
Terrific Teens programme of work facilitated the creation of Patient Voices Reflective digital stories in which storytellers explored the experiences of teenagers with Sickle Cell Anaemia, their siblings, their families and their parents.
Work Well West London Alliance
The West London Alliance (WLA) is a public sector partnership between seven West London local authorities of Barnet, Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon and Hounslow.
Related news and updates
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Read the full storyChildren's Academic and Health Results for Sickle Cell Disease in England (CARES)
We aim to investigate the health outcomes, health service utilisation, and educational outcomes of all children with Sickle Cell Disease in England. Sickle cell disease (SCD) is one of the most common genetic diseases in the UK affecting…
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Read the full storyGenomics England drives Sickle Cell research through the Diverse Data Initiative
In black communities, more research is needed to improve our understanding of health conditions and to develop better treatments. The IBHO BioResource is a collaboration between NIHR BioResource, NIHR Maudsley BioResource Centre hosted at King's…
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Read the full storyRevolutionary gene-editing therapy for sickle cell offers hope of a cure for NHS patients
NHS patients with sickle cell disease will soon have access to a revolutionary gene-editing treatment, offering new hope for a cure. The one-off gene therapy, known as exagamglogene autotemcel (or ‘exa-cel’), has been approved for use on the NHS…
