Patient hub
Welcome to the Patient Hub, your dedicated resource for information, support, and guidance tailored for individuals living with Sickle Cell Anaemia and related conditions.
This hub offers a range of helpful resources to support your journey, from practical tools in our Patient Resources section and essential advice in the Citizens Advice Bureau guidance to community aid information through West London Food Banks. Gain insight from others’ journeys in Personal Experiences and Patient Voices for Sickle Cell Anaemia, discover tips for safe travel in our Travel Guides, and explore ways to save on medications through the Prescription Savings Campaign. For more support, our Useful Links provide easy access to additional trusted resources. Dive in to find guidance, inspiration, and community.
Essential resources and patient support
Health and wellbeing resources
In-depth information on treatments, pain management, sexual health, Covid-19, and travel guidance.
Citizens Advice guidance
Advice for patients within the West London Haemoglobinopathy region.
Accessing benefits
Discover the benefits and support offered by the UK government and local councils for individuals affected by Sickle Cell, Thalassaemia, and rare anaemias.
Personal experiences
Explore videos featuring people from around the world as they share their journeys and insights on managing life with a red blood cell disorder.
Travel guides
Essential advice to help you prepare and ensure your travel plans go smoothly.
Prescription savings campaign
Find out about the prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme.
Useful links
Links to support networks, information, and activities related to Sickle Cell and Thalassaemia.
Patient voices
Terrific Teens programme of work facilitated the creation of Patient Voices Reflective digital stories in which storytellers explored the experiences of teenagers with Sickle Cell Anaemia, their siblings, their families and their parents.
Work Well West London Alliance
The West London Alliance (WLA) is a public sector partnership between seven West London local authorities of Barnet, Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon and Hounslow.
Related news and updates
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Read the full storySickle Cell and Thalassaemia Awareness Day
Join The Central London Community Healthcare NHS Trust for their Sickle Cell and Thalassaemia Awareness Day on June 19th Come along and enjoy some food and refreshments and some activities for kids and adults, along side education and awareness…
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Read the full storyUKFHD 59th Academic Meeting - Wednesday 7th May 2025 - Hybrid Event - Registration Now Open
UKFHD 59th Academic Meeting Registrations are now open for the UKFHD 59th Academic Meeting which is being held on Wednesday 7th May 2025. This will be held as a hybrid event from the Cavendish Conference Centre in London and we do hope you will…
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Read the full storySickle Cell Disease Research: A Day of Learning, Art, and Empowerment
We invite you to a special and interactive event dedicated to people living with sickle cell disease (SCD), their families, and carers. This day is all about learning, connecting, and exploring how research can improve lives and how you can get…
