Patient hub
Welcome to the Patient Hub, your dedicated resource for information, support, and guidance tailored for individuals living with Sickle Cell Anaemia and related conditions.
This hub offers a range of helpful resources to support your journey, from practical tools in our Patient Resources section and essential advice in the Citizens Advice Bureau guidance to community aid information through West London Food Banks. Gain insight from others’ journeys in Personal Experiences and Patient Voices for Sickle Cell Anaemia, discover tips for safe travel in our Travel Guides, and explore ways to save on medications through the Prescription Savings Campaign. For more support, our Useful Links provide easy access to additional trusted resources. Dive in to find guidance, inspiration, and community.
Essential resources and patient support
Health and wellbeing resources
In-depth information on treatments, pain management, sexual health, Covid-19, and travel guidance.
Citizens Advice guidance
Advice for patients within the West London Haemoglobinopathy region.
Accessing benefits
Discover the benefits and support offered by the UK government and local councils for individuals affected by Sickle Cell, Thalassaemia, and rare anaemias.
Personal experiences
Explore videos featuring people from around the world as they share their journeys and insights on managing life with a red blood cell disorder.
Travel guides
Essential advice to help you prepare and ensure your travel plans go smoothly.
Prescription savings campaign
Find out about the prescription money saving schemes available to patients: the Prescription Prepayment Certificate and the Low Income Scheme.
Useful links
Links to support networks, information, and activities related to Sickle Cell and Thalassaemia.
Patient voices
Terrific Teens programme of work facilitated the creation of Patient Voices Reflective digital stories in which storytellers explored the experiences of teenagers with Sickle Cell Anaemia, their siblings, their families and their parents.
Related news and updates
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Read the full storyLaptops and Drinks - Black History Month Special
Laptops and Drinks was inspired by a group of professional black women coming together, wanting to share some of the honest conversations about life’s dilemmas and experiences. Growing up we recognised that there were so many areas not discussed…
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Read the full storySickle Cell Disease - The Final Frontier!
Even after more than 40 years of raising public awareness of sickle cell disease, extensive education and training of healthcare professionals and the development of specialist services, we’re still witnessing unacceptable standards in nursing…
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Read the full storyGirl, 13, suffered so much pain from disease, she couldn't play sport or go on holiday
Neriya-May Hall has had her life transformed by the use of ultrasound to administer blood transfusions and is now much less likely to experience a sickle cell crisis. A 13-year-old girl who suffered “so much pain” it left her unable to play sport…
