Useful links
For patients and carers
Condition information
- NHS Sickle Cell Disease Overview – Comprehensive NHS overview
- National Heart Lung and Blood Institute – Detailed information on blood disorders
- NHS Thalassaemia Overview – NHS information on thalassaemia
- NHS Inform – General health and condition information
- S for Sickle Cell – Educational resources on sickle cell
- Sickle Cell Education Series – Educational series on managing sickle cell
Youth and family resources
- Kids Health – Health education resources for children
- Over The Wall Camp – Recreation camps for children with health challenges
- Stanford Children's Health – Pediatric health resources
- Sickle Cell Anaemia Video – Informational video on sickle cell
- Growing Up with Sickle Cell Video – Support for young patients and families
- Sickle Cell Society Children's Activities – Activities for children with sickle cell
- Sickle Cell and Young Stroke Survivors – Resources for young stroke survivors and families
Parent resources
- Sickle Cell Disease in Children – Information tailored for parents
- Sickle Cell Disease (for Parents) – Guidance and support for parents
- Patient Family's Guide to Research – Research guide for families
- Knowledge, Perspective, Advice, and Comfort for Parents – Supportive resources for parents
- Resources for Parents – Additional resources and support
Support groups
For clinical professionals
Clinical guidelines and standards
- West London HCC Guidelines for the Management Of Sickle Cell Disease In Adults
- West London HCC Guidelines for the Management Of Sickle Cell Disease In Paediatrics
- Red Cell Network Guidelines
- UKFHD 4th Edition of UKTS Standards of Care
West London HCC network hospitals
- Hammersmith Hospital – (Imperial College Healthcare NHS Trust)
- St. Mary’s Hospital – (Imperial College Healthcare NHS Trust)
- Northwick Park Hospital – (London North West University Healthcare NHS Trust)
- Central Middlesex Hospital – (London North West University Healthcare NHS Trust)
- St George's Hospital – (St George's University Hospitals NHS Foundation Trust)
- Chelsea & Westminster Hospital – (Chelsea & Westminster Hospitals NHS Foundation Trust)
- Ealing Hospital – (London North West University Healthcare NHS Trust)
- West Middlesex Hospital – (Chelsea & Westminster Hospitals NHS Foundation Trust)
- Hillingdon Hospital – (The Hillingdon Hospitals NHS Foundation Trust)
- Watford General Hospital – (West Hertfordshire Hospitals NHS Trust)
- Luton and Dunstable University Hospital – (Bedfordshire Hospitals NHS Foundation Trust)
- Bedford Hospital – (Bedfordshire Hospitals NHS Foundation Trust)
- Kingston Hospital – (Kingston Hospital NHS Foundation Trust)
- St Helier Hospital – (Epsom and St Helier University Hospitals NHS Trust)
- East Surrey Hospital – (Surrey and Sussex Healthcare NHS Trust)
- St. Peter's Hospital – (Ashford and St. Peter's Hospitals NHS Foundation Trust)
- Royal Surrey County Hospital – (Royal Surrey County Hospital NHS Foundation Trust)
- Crawley Hospital – (Sussex Community NHS Trust)
- Hemel Hempstead Hospital – (West Hertfordshire NHS Trust)
Partnership organisations
- Scottish Paediatric and Adult Haemoglobinopathy Network (SPAH)
- Cardiff and Vale University Health Board
Sickle Cell and Thalassaemia charities
- United Kingdom Thalassaemia Society
- Sickle Cell Society
- Sickle Cell Disease Foundation
- Sickle Cell 101
- The Sickle Cell Podcast
NHS organisations
- Give Blood – NHS blood donation services
- NHS Sickle Cell and Thalassaemia Screening Programme
- NHS Networks
- Brent Sickle Cell Support Group
- British Association for Behavioural & Cognitive Psychotherapies (BABCP)
- Blood and Transplant NHS
- Adult Red Cell Services
- Kevin Kararwa Leukaemia Trust
International resources
- Sickle Cell Information Centre
- Centers for Disease, Control and Prevention SCD
- Centers for Disease, Control and Prevention Thalassaemia
- Global Sickle Cell Disease Network
- American Sickle Cell Anaemia Association
- Score Charity
- Thalassaemia International Federation
Professional links
For contributions or to add any useful links, please contact us at imperial.WLHCCinfo@nhs.net.
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