News and Updates
News and Updates
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Read the full storyChildren's Academic and Health Results for Sickle Cell Disease in England (CARES)
We aim to investigate the health outcomes, health service utilisation, and educational outcomes of all children with Sickle Cell Disease in England. Sickle cell disease (SCD) is one of the most…
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Read the full storyWest London HCC Education Day
On Wednesday the 15th of January the HCC (Sickle Cell Network) delivered a free training day at the Royal College of Physicians. Please see the below snippets of some of the talks which took place.
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Read the full storyManaging Nutrition in Sickle Cell Disorder
Dr Claudine Matthews has developed this online course: To improve sickle cell patients' access to evidence-based nutrition and diet education tailored to their unique nutritional needs, risks…
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Read the full storyGenomics England drives Sickle Cell research through the Diverse Data Initiative
In black communities, more research is needed to improve our understanding of health conditions and to develop better treatments. The IBHO BioResource is a collaboration between NIHR BioResource,…
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Read the full storyRevolutionary gene-editing therapy for sickle cell offers hope of a cure for NHS patients
NHS patients with sickle cell disease will soon have access to a revolutionary gene-editing treatment, offering new hope for a cure. The one-off gene therapy, known as exagamglogene autotemcel (or…
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Read the full storyImproving Black Health Outcomes Education Events
Join us at Hammersmith Hospital for a series of exciting and interactive patient engagement events! Whether you're a patient, family member, or carer, this is your chance to dive into the world of…
