Sickle Cell Disease Research: A Day of Learning, Art, and Empowerment
We invite you to a special and interactive event dedicated to people living with sickle cell disease (SCD), their families, and carers. This day is all about learning, connecting, and exploring how research can improve lives and how you can get involved. You’ll meet experts, share your experiences, and participate in fun and engaging activities that help you understand SCD better, plus find out how you can play an important role in helping medical progress.
Food Provided:
To keep you energized throughout the day, we’ll be providing a selection of refreshments:
Pastries and coffee upon arrival
Hot lunch
Tea and biscuits breaks
Event Location:
The event will be held in one of the elegant conference rooms at Chelsea Football Club, offering a comfortable and professional environment for a day of learning and connection. Attendees will be seated throughout the event, ensuring a relaxed and accessible experience.
Chelsea Football Club
Fulham Road London SW6 1HS
What to Expect:
- Inspiring Video Showcase – "Research in Colour": Watch a short film about the latest sickle cell research, including stories from patients, healthcare professionals, and researchers.
- Panel Discussion with Experts: Hear from doctors, researchers, and patients who will talk about their experiences and answer your questions. This is a chance to understand the science behind sickle cell and how research is changing lives.
- Interactive Workshops: Get involved in hands-on activities that will help you understand the latest sickle cell treatments and learn how research impacts everyday life.
- Art Exhibition – "Expressions of Sickle Cell": Explore powerful artwork by UK artist Laurel Brumant. Her art expresses the journey of living with sickle cell.
- Virtual Reality Stations – Experience Life with Sickle Cell: Use VR goggles to experience life from the perspective of someone living with sickle cell disease.
- Microscope Activity – Explore Cells Up Close: Ever wondered what sickle cell looks like up close? You’ll have the chance to look at sickle and normal cells under a microscope with the help of our experts.
Why You Should Attend:
- Empowerment: Learn how research can improve your life and how you can take part in research to help others.
- Break the Stigma: Meet others who are on the same journey and help challenge the myths around clinical trials.
- Community: Connect with others who truly understand your experience and be part of a supportive, inclusive community.
- Fun and Interactive Learning: Enjoy a day of art, technology, and education.
Who Should Attend:
Patients living with sickle cell disease
Families and Carers of people with sickle cell disease
What You’ll Get:
- A day filled with fun and learning
- Opportunity to meet other people with sickle cell disease, doctors and sickle cell researchers
- Opportunities to ask questions and share your experiences with experts
- A better understanding of what participating in research looks like
Spaces are limited, so please register now!
We can’t wait to see you there and work together to create a better standard of care for everyone affected by sickle cell disease.
