Useful links

Condition information

• NHS Sickle Cell Disease Overview – Comprehensive NHS overview
• National Heart Lung and Blood Institute – Detailed information on blood disorders
• NHS Thalassaemia Overview – NHS information on thalassaemia
• NHS Inform – General health and condition information
• S for Sickle Cell – Educational resources on sickle cell
• Sickle Cell Education Series – Educational series on managing sickle cell

Youth and family resources

• Kids Health – Health education resources for children
• Over The Wall Camp – Recreation camps for children with health challenges
• Stanford Children's Health – Pediatric health resources
• Sickle Cell Anaemia Video – Informational video on sickle cell
• Growing Up with Sickle Cell Video – Support for young patients and families
• Sickle Cell Society Children's Activities – Activities for children with sickle cell
• Sickle Cell and Young Stroke Survivors – Resources for young stroke survivors and families

Parent resources

• Sickle Cell Disease in Children – Information tailored for parents
• Sickle Cell Disease (for Parents) – Guidance and support for parents
• Patient Family's Guide to Research – Research guide for families
• Knowledge, Perspective, Advice, and Comfort for Parents – Supportive resources for parents
• Resources for Parents – Additional resources and support

Support groups

• Wandsworth Sickle Cell and Thalassaemia Support Group
• Croydon Sickle Cell & Thalassaemia Support Group
• Ealing, Hammersmith & Fulham Sickle Cell & Thalassaemia Support Group
• Sickle Plus – Additional support for sickle cell
• Children & Young People's Mental Health Services
• Mental Health Services

Clinical guidelines and standards

• West London HCC Guidelines for the Management Of Sickle Cell Disease In Adults
• West London HCC Guidelines for the Management Of Sickle Cell Disease In Paediatrics
• Red Cell Network Guidelines
• UKFHD 4th Edition of UKTS Standards of Care

West London HCC network hospitals

• Hammersmith Hospital – (Imperial College Healthcare NHS Trust)
• St. Mary’s Hospital – (Imperial College Healthcare NHS Trust)
• Northwick Park Hospital – (London North West University Healthcare NHS Trust)
• Central Middlesex Hospital – (London North West University Healthcare NHS Trust)
• St George's Hospital – (St George's University Hospitals NHS Foundation Trust)
• Chelsea & Westminster Hospital – (Chelsea & Westminster Hospitals NHS Foundation Trust)
• Ealing Hospital – (London North West University Healthcare NHS Trust)
• West Middlesex Hospital – (Chelsea & Westminster Hospitals NHS Foundation Trust)
• Hillingdon Hospital – (The Hillingdon Hospitals NHS Foundation Trust)
• Watford General Hospital – (West Hertfordshire Hospitals NHS Trust)
• Luton and Dunstable University Hospital – (Bedfordshire Hospitals NHS Foundation Trust)
• Bedford Hospital – (Bedfordshire Hospitals NHS Foundation Trust)
• Kingston Hospital – (Kingston Hospital NHS Foundation Trust)
• St Helier Hospital – (Epsom and St Helier University Hospitals NHS Trust)
• East Surrey Hospital – (Surrey and Sussex Healthcare NHS Trust)
• St. Peter's Hospital – (Ashford and St. Peter's Hospitals NHS Foundation Trust)
• Royal Surrey County Hospital – (Royal Surrey County Hospital NHS Foundation Trust)
• Crawley Hospital – (Sussex Community NHS Trust)
• Hemel Hempstead Hospital – (West Hertfordshire NHS Trust)

Partnership organisations

• Scottish Paediatric and Adult Haemoglobinopathy Network (SPAH)
• Cardiff and Vale University Health Board

Sickle Cell and Thalassaemia charities

• United Kingdom Thalassaemia Society
• Sickle Cell Society
• Sickle Cell Disease Foundation
• Sickle Cell 101
• The Sickle Cell Podcast

NHS organisations

• Give Blood – NHS blood donation services
• NHS Sickle Cell and Thalassaemia Screening Programme
• NHS Networks
• Brent Sickle Cell Support Group
• British Association for Behavioural & Cognitive Psychotherapies (BABCP)
• Blood and Transplant NHS
• Adult Red Cell Services
• Kevin Kararwa Leukaemia Trust

International resources

• Sickle Cell Information Centre
• Centers for Disease, Control and Prevention SCD
• Centers for Disease, Control and Prevention Thalassaemia
• Global Sickle Cell Disease Network
• American Sickle Cell Anaemia Association
• Score Charity
• Thalassaemia International Federation

Professional links

• National Haemoglobinopathy Panel
• Stanmap