News and Updates

News and Updates

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  Invisible Warrior & Design For Sickle Cell at the Great Exhibition Road Festival 5 Jun 2023

  Join Invisible Warrior & Design For Sickle Cell at the Great Exhibition Road Festival! Talk to scientists to learn about blood, blood cells, and blood diseases. Meet a patient living with Sickle…

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  HCC Teaching session Antenatal Screening of Haemoglobinopathies 15 May 2023

  West London Haemoglobinopathy Coordinating Centre (HCC) Antenatal Screening of Haemoglobinopathies (Sickle Cell & Thalassaemia) Midwives’ Virtual Education Programme   Wednesday 17th May 2023 @ 2pm…

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  Gene Therapy for SCD in Africa and the activities by the Global Gene Therapy Initiative 25 Apr 2023

  Please head over to our YouTube to watch our Educational Session that occurred on the 21st of April 2023 about Gene Therapy for Sickle Cell in Africa and the activities by the Global Gene Therapy…

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  Sickle Cell Education Series Episode 3: Treatments, How are they meant to treat me? 17 Apr 2023

  Welcome to Episode 3 of our Sickle Cell Education Series, a comprehensive and engaging year-long course tailored for individuals with sickle cell disorder. Title: Treatments - Are they meant to…

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  Appropriateness in Access to Automated Red Blood Cell Exchange: Discussion forum for patients and clinicians to help improve access to care. 11 Apr 2023

  The Sickle Cell Society and the Haemoglobinopathy Coordination Centres (HCC’s) have recently distributed a survey to sickle cell patients to ask for views on the provision of Automated Red Blood…

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  Health Improves After Stem Cell Transplant, But Challenges Remain 6 Mar 2023

  Red blood cells are shown in a graphic. People with sickle cell disease (SCD) may see their physical, mental, and social health get better after a stem cell transplant, and this may help them pursue…