News and Updates
News and Updates
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'What's the worst that could happen?': Love in the sickle cell capital of the world
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar…
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Are You Moving Up to Adult Sickle Care
Calling young people with sickle cell & parents! Are you transitioning from paediatric to adult services? Share your experiences with us in London next week! Email communications@sicklecellsociety.
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New on Rare Disease Advisor SCD: Patients With SCD Report Improved Overall Health After Voxelotor Treatment
Patients With SCD Report Improved Overall Health After Voxelotor Treatment Voxelotor treatment may have a positive impact on the way patients with sickle cell disease (SCD) perceive their…
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Blood transfusions gave me an extra 24 hours with my dying mum - now I give blood in her memory
A London woman from Walthamstow was inspired to give blood after she was able to say goodbye to her mother thanks to blood transfusions. Vanessa Davis, 24, had seen her mum's health start to…
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Updated guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19
The guidance has been updated in light of the move to a Tier 4 lockdown for much of the UK population resulting from the recent rise in COVID-19 cases and admissions.