Patient advocacy in healthcare settings is a top priority for us here at SC101. While we appreciate and acknowledge all healthcare providers, there are still some things they get wrong when it comes to those with sickle cell disease. We put together a brief video of discussing what tends to go wrong in this video.
Laptops and Drinks was inspired by a group of professional black women coming together, wanting to share some of the honest conversations about life’s dilemmas and experiences. Growing up we recognised that there were so many areas not discussed…
Even after more than 40 years of raising public awareness of sickle cell disease, extensive education and training of healthcare professionals and the development of specialist services, we’re still witnessing unacceptable standards in nursing…
Neriya-May Hall has had her life transformed by the use of ultrasound to administer blood transfusions and is now much less likely to experience a sickle cell crisis. A 13-year-old girl who suffered “so much pain” it left her unable to play sport…
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