News and Updates
News and Updates
Showing 13-18 of 69 results
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Patient Voices Sickle Cell Anaemia
Sickle Cell Anaemia The second project in the Terrific Teens programme of work facilitated the creation of Patient Voices Reflective digital stories in which storytellers explored the experiences of…
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The Sickle Cell Society Podcast
The Sickle Cell Society just launched the Sickle Cell Podcast! With episode, hosted by Kesewaa Browne and a panel of experts discuss transitioning from child to adult sickle cell services. Listen…
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Sickle Cell Society Archive: Sickle Cell Society SA/SCS
Over a number of years the Brent Sickle Cell & Thalassaemia Centre has been working with the Wellcome Collection Library to archive some of the historical materials amassed by the Centre since its…
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NHS rolls out ‘life-changing’ treatment for thousands with sickle cell disease
Thousands of patients with sickle cell disorder are to be offered a new “life-changing” treatment on the NHS from today (3 May), following the approval and roll-out of a new drug that could…
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Exa-Cel (Casgevy) Gene Therapy Update
The National Institute for Health and Care Excellence (NICE) announced their draft decision to reject the CRISPR gene therapy, Exa-cel, as a treatment for sickle cell disorder. Exa-cel, also known…
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'What's the worst that could happen?': Love in the sickle cell capital of the world
The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar…