Sickle Cell and Thalassaemia Competency Framework for Nursing Staff

The Sickle Cell and Thalassaemia (SCT) competency framework outlines the core skills and knowledge needed to support people at risk of these conditions.

The framework is relevant to a range of health professionals, including sickle cell and thalassaemia specialists, genetic counselors, midwives, and health visitors.

The SCT competency framework covers areas such as:

· Identification

· Communication

· Supporting informed choice

· Knowledge and awareness

· Using genetic information, tests, and results

· Maintaining SCT competence

· Accessing information and resources

· Ongoing support

Health professionals should use their professional judgment to apply the relevant knowledge, skills, and attitudes to provide effective care for each individual. If they don't have the necessary specialist education, experience, or expertise, they should seek support from colleagues or other relevant services.

The NHS Sickle Cell and Thalassaemia Screening Programme identifies carriers of sickle cell or thalassaemia so that they can receive support, information, and advice. This can help them make informed reproductive choices.

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Caring for people with sickle cell disease and thalassaemia syndromes a competency framework for nursing staff