Can you tell it's Sickle Cell

NHS England and NHS Improvement is launching a new Sickle Cell awareness campaign ahead of World Sickle Cell Day 2022.

Objectives/Aims
Can you tell 1

The campaign, which is part of a bigger drive to improve sickle cell care across the NHS, aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care staff and those living with the condition and their carers.

It also aims to promote and generate uptake of a new e-learning module about the condition and the healthcare inequalities related to it.

Audience(s)

  • NHS Urgent Emergency Care staff
  • GPs, Practice Nurses
  • Other primary care staff

  • People living with Sickle Cell disease / carers / wider communities

 

Key messages

NHS England and NHS Improvement is launching a new Sickle Cell awareness campaign ahead of World Sickle Cell Day 2022
The campaign, which is part of a bigger drive to improve sickle cell care across the NHS, aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care staff and those living with the condition and their carers.
Anyone can be born with Sickle Cell disorder, but it is most common amongst people from a black Caribbean or black African background

If a person has any of these symptoms, immediate action should be taken as they could be signs of a Sickle Cell crisis or complication:

  • Pain
  • Signs of infection including fever
  • One-sided paralysis or weakness in the face, arms or legs
  • Confusion
  • Difficulty walking or talking
  • Sudden visual changes
  • Unexplained numbness
  • Severe headache
  • Breathlessness, chest pain or low oxygen levels
  •  Acting quickly can save lives
  •  If someone has these symptoms, they should seek urgent medical attention – this may be via A&E, 999 or their local haematology unit – and should be treated immediately.
  • Patients admitted to the hospital for sickle cell complications should be referred promptly to and treated by haematologists or clinicians with expertise in sickle cell disorders. A new training module for NHS staff has also been launched to support increased knowledge of the condition and how to treat it. The training module also includes information on healthcare inequalities related to the condition Here

Call to action

  • If someone has symptoms of a crisis, they should seek urgent medical attention – this may be via A&E, 999 or their local haematology unit – and should be treated immediately.
  • NHS staff can complete a new free e-learning module to support increased knowledge of the condition and how to treat it. The training module also includes information on healthcare inequalities related to the condition:  https://www.e-lfh.org.uk/programmes/health-inequalities/

Are there regionalised messages?

Regions can include local stats on patients living with Sickle Cell, especially London and other high black Caribbean/African-populated areas.

Secondary messages

  • Sickle cell disorder is the name for a group of inherited red blood cell disorders. The most serious type is called sickle cell anaemia. People with sickle cell disease produce unusually shaped red blood cells that can cause excruciating pain and other problems because they do not live as long as healthy blood cells and can block blood vessels.
  • Sickle cell disorder is a serious and lifelong health condition, although treatment can help manage many of the symptoms, reduce organ damage and prolong life.
  • Painful episodes are referred to as sickle cell crises. Treatment includes strong painkillers such as morphine to control the pain, intravenous fluids and oxygen.
  • All patients presenting with acute sickle pain should receive initial analgesia within 30 minutes and have achieved good pain relief within two hours.
  • Over half of sickle cell disease patients living in the most deprived areas experience re-admission to hospital in comparison with 28% among those hospitalised from the least deprived areas. Sickle cell patients admitted from the most deprived areas are twice as likely to die in hospital in comparison with those admitted from the least deprived areas. The campaign aims to reach these areas as a priority.
  • This new campaign comes after the NHS struck a deal last October to roll out the first sickle cell treatment in 20 years – a drug called crizanlizumab which will help up to 5,000 over three years to have a much better quality of life. The new treatment is delivered by a transfusion drip and works by binding to a protein in the blood cells to prevent the restriction of blood and oxygen supply that lead to a sickle cell crisis.

Can you tell
Top 3 Ways to Help

  • Share our messages on social media, email and staff intranets – especially encouraging staff to complete the new e-learning module. Think about profiling staff that have completed the module and/or work in the treatment of Sickle Cell

  • Download campaign materials from the Campaign Resource Centre and share with colleagues, local communications networks, community organisations etc

  • Produce localised media releases – include local stats about people living with Sickle Cell in your area, what you are doing locally to improve care for people with Sickle Cell, local relevant spokespeople encouraging staff to complete the e-learning module

 

 

 

 

Resources to Use

You can find all resources on the Campaign Resource Centre, resources include:

  • Social media graphics
  • Posters and leaflets
  • Pull-up banners
  • Patient card
  • Digital screens
  • Email signatures

 

Example social media posts 
signs of crisis twitter

Twitter

Know the signs of a Sickle Cell crisis:

Pain

Signs of infection

One-sided paralysis/weakness

Confusion

Difficulty walking/talking

Sudden visual changes

Unexplained numbness

Severe headache

Breathlessness


Acting quickly can save lives.
#CanYouTellItsSickleCell

E-learning Module

Know the signs of a Sickle Cell crisis. 
  
Complete the new free e-learning module covering symptoms, how to treat it and the healthcare inequalities related to the condition. 
  
www.e-lfh.org.uk/programmes/health-inequalities 
  
Acting quickly can save lives. #CanYouTellItsSickleCell

Tweets

Tweet for staff
A new free e-learning module has been created for NHS Staff, helping you to act fast and save lives. This covers symptoms, treatment and healthcare inequalities experienced by people with the condition. 
  
Link: www.e-lfh.org.uk/programmes/health-inequalities 
  
#CanYouTellItsSickleCell 

Tweet for patients/public
If someone is having a sickle cell crisis, acting fast saves lives. 
  
That’s why we’re training NHS staff to recognise the signs and symptoms of a crisis, know how to treat patients and address the healthcare inequalities related to the condition. 
  
#CanYouTellItsSickleCell

LinkedIn

Know the signs of a Sickle Cell crisis: 
Pain 
Signs of infection 
One-sided paralysis/weakness 
Confusion 
Difficulty walking/talking 
Sudden visual changes 
Unexplained numbness 
Severe headache 
Breathlessness 
  
Complete the new e-learning module on sickle cell at: https://www.e-lfh.org.uk/programmes/health-inequalities/  
  
#CanYouTellItsSickleCell 

 

Example long copy (c. 250 words)

This can be used for bulletins/websites/press releases, depending on your activity

NHS England and NHS Improvement is launching a new Sickle Cell awareness campaign ahead of World Sickle Cell Day 2022.
The campaign, which is part of a bigger drive to improve sickle cell care across the NHS, aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care staff and those living with the condition and their carers.
Anyone can be born with Sickle Cell disorder, but it is most common amongst people from a black Caribbean or black African background. If a person has any of these symptoms, immediate action should be taken as they could be signs of a Sickle Cell crisis or complication:

signs of crisis linkedin

Pain
Signs of infection including fever
One-sided paralysis or weakness in the face, arms or legs
Confusion
Difficulty walking or talking
Sudden visual changes
Unexplained numbness
Severe headache
Breathlessness, chest pain or low oxygen levels
Acting quickly can save lives.

If someone has these symptoms, they should seek urgent medical attention – this may be via A&E, 999 or their local haematology unit – and should be treated immediately. Patients admitted to the hospital for sickle cell complications should be referred promptly to and treated by haematologists or clinicians with expertise in sickle cell disorders

A new training module for NHS staff has also been launched to support increased knowledge of the condition and how to treat it. The training module also includes information on healthcare inequalities related to the condition: https://www.e-lfh.org.uk/programmes/health-inequalities/

 

Example short copy (c. 100 words)

This can be used for bulletins/websites/press releases, depending on your activity.

A new campaign aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care staff and those living with the condition and their carers.
If someone has these symptoms, they should seek urgent medical attention:

Pain
Signs of infection including fever
One-sided paralysis or weakness in the face, arms or legs
Confusion
Difficulty walking or talking
Sudden visual changes
Unexplained numbness
Severe headache
Breathlessness, chest pain or low oxygen levels
Acting quickly can save lives.

A new training module for NHS staff includes signs of a crisis, how to treat it and information on healthcare inequalities related to the condition: https://www.e-lfh.org.uk/programmes/health-inequalities/

Example short copy (c. 100 words)

CALL TO ACTION COPY FOR UEC / OTHER RELEVANT ROLES:
This can be used for bulletins/websites/press releases, depending on your activity.

Acting quickly can save lives; make sure you know how to respond in a Sickle Cell crisis situation.
Complete the new FREE online training now at: https://www.e-lfh.org.uk/programmes/health-inequalities/ .
If someone has these symptoms, they should receive urgent medical attention:

Pain
Signs of infection including fever
One-sided paralysis or weakness in the face, arms or legs
Confusion
Difficulty walking or talking
Sudden visual changes
Unexplained numbness
Severe headache
Breathlessness, chest pain or low oxygen levels
Acting quickly can save lives.

Get in Touch

Send feedback and questions – or let us know how your activity performed by email to the Healthcare Inequalities Improvement comms team here


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