We understand that everyone's journey through hospital is unique, but getting to know your centre, the team and what services are available can help prepare you for what to expect.
West London hospital Sickle Cell Network
Hammersmith Hospital- (Imperial College Healthcare NHS Trust)
St. Mary’s Hospital- (Imperial College Healthcare NHS Trust
Northwick Park Hospital- (London North West University Healthcare NHS Trust)
Central Middlesex Hospital- (London North West University Healthcare NHS Trust)
St George's Hospital- (St George's University Hospitals NHS Foundation Trust)
Chelsea & Westminster Hospital- (Chelsea & Westminster Hospitals NHS Foundation Trust)
Ealing Hospital- (London North West University Healthcare NHS Trust)
West Middlesex Hospital- (Chelsea & Westminster Hospitals NHS Foundation Trust)
Hillingdon Hospital- (The Hillingdon Hospitals NHS Foundation Trust)
Watford General Hospital- (West Hertfordshire Hospitals NHS Trust)
Luton and Dunstable University Hospital NHS Foundation Trust
Bedford Hospital NHS Trust
Kingston Hospital- (Kingston Hospital NHS Foundation Trust)
St Helier Hospital- (Epsom and St Helier University Hospitals NHS Trust)
East Surrey Hospital- (Surrey and Sussex Healthcare NHS Trust)
St. Peter's Hospital- (Ashford and St. Peter's Hospitals NHS Foundation Trust)
Royal Surrey County- Hospital (Royal Surrey County Hospital NHS Foundation Trust)
Crawley Hospital- (Sussex Community NHS Trust)
Hemel Hempstead Hospital - (West Hertfordshire NHS Trust)
Our network includes the Haemoglobinopathy Coordinating Centre (HCC), Specialist Haemoglobinopathy Teams (SHT), and Local Haemoglobinopathy Teams (LHT), each offering specialised services. Here, you’ll find introductions to key centres, including Imperial College Healthcare, London North West, St George's, and more, along with our partner organisations across the UK.
Click below to learn more about each centre and discover how our network is here to guide you through every step.
The Sickle Network is made up of:
HCC - Haemoglobinopathy Coordinating Centre
SHT - Specialist Haemoglobinopathy Teams
LHT - Local Haemoglobinopathy Teams
Click on any of the headings below to expand that section.
HCC & SHT
Imperial College Healthcare NHS Trust
Hammersmith Hospital
Location
Catherine Lewis Centre Hammersmith Hospital- Outpatients
Renal and Haematology Triage Unit- Emergency Pathway
The red blood cell disorder service is led by a specialist multidisciplinary team which cares for patients with haemoglobinopathies (sickle cell and thalassaemia), less common red cell disorders and other non-malignant blood disorders. The service is one of the leading specialist centres for non-malignant haematology with nationally renowned expertise in the investigation and management of red cell disorders.
The service provides a wide range of services forpatients, including day care treatment, inpatient wards, outpatient clinics, clinical nurse specialist support, and pregnancy care (provided jointly with Queen Charlotte’s & Chelsea Hospital). There is access to a dedicated clinical psychologist and social worker. The service provides care for approximately 350 adult patients with sickle cell disorders and work closely with other teams including paediatric haematology and our partners in the community. The service offers a day care pain management service for sickle cell patients at Hammersmith Hospital and a telephone support line to help our patients manage their conditions independently where possible.
Clinical trials and research
The team have an active research programme in sickle cell disease and other non-malignant blood disorders and invite patients to participate in national and international disease registries. A member of the team may inform patients about any clinical trials or other research studies relevant to the condition which patients can find out more about on a completely voluntary basis. Current clinical trials involve treatments for sickle cell disease, iron overload and pyruvate kinase deficiency.
Education
If you are interested in an elective placement with the Hammersmith service, please contact email
Haemoglobinopathies lead Prof. Mark Layton
St Mary's Hospital
Location
Outpatients Paediatric Haematology Day Unit
Emergency Pathway St Marys Paediatric Emergency Department
The paediatric haematology, blood and marrow transplantation unit at St Mary’s Hospital specialises in the care of children with haemoglobinopathies and red cell disorders, bone marrow transplantation and bone marrow failure syndromes.
The service provide a comprehensive service for the medical management of children with sickle cell disease and thalassaemia, including a dedicated teenage and young adult transition service. The service is a specialist haemoglobinpathy centre in the Paediatric Imperial Red Cell Network and West London Haemoglobinopathy Coordinating Centre (HCC), providing tertiary services to local patients and outreach services to haemoglobinopathy patients at hospitals across north west London and the Thames Valley.
The Trust’s paediatric haemoglobinopathy service was ranked the top provider in terms of meeting national quality standards by the West Midlands Quality Review Service in their 2014–16 peer review of services for haemoglobin disorders. The team have excellent ’cradle to adult’ care pathways for children with haemoglobin disorders, with robust transition services.
The bone marrow transplant unit has four dedicated transplant cubicles with HEPA filtration and positive pressure control. It carries out 34 to 37 allogeneic transplants a year (both related and unrelated donors) in children with thalassaemia, sickle cell disease, aplastic anaemia, Diamond Blackfan anaemia, Fanconi anaemia, dyskeratosis congenita and other inherited bone marrow failure syndromes. The transplant team has undertaken several innovative transplants using alternative donors for children with haemoglobinopathies and bone marrow failure.
After discharge from the inpatient ward, children are looked after by an expert multidisciplinary team on a dedicated, purpose-built day care unit which is reserved for immunocompromised patients and includes facilities for protective isolation. The service also has a comprehensive and dedicated joint specialist service for long-term follow up for recipients of a bone marrow transplant with a consultant haematologist and consultant endocrinologist.
The service also manages children with cancer, bleeding disorders and thrombotic problems. We offer specialist paediatric transfusion advice and provide high-level shared care for children with malignancies.
Conditions the service treat
The team provides specialised care for:
• haemoglobinopathies – sickle cell disease and thalassaemia
• bone marrow failure
• bone marrow transplantation
• paediatric oncology
• general paediatric haematology
• haemostasis and thrombosis
Treatments offered
Bone marrow transplants – sibling and matched family donor transplants, alternative donor transplants with unrelated matched and mismatched transplants, haploidentical transplants
Tertiary care for patients with haemoglobin disorders, including automated red cell exchange transfusions (erythrocytaphaeresis), top-up blood transfusions, hydroxycarbamide and iron chelation therapy, surgery, paediatric intensive care and 24 hour paediatric emergency department.
Level two care for paediatric oncology patients, including infusional, day care and bolus chemotherapy, supportive care and blood product transfusions
Haemoglobinopathies Lead:
Dr Kirstin Lund
Lead of the Bone Marrow Transplant Programme:
Prof. Josu de la Fuente
London North West
Northwick Park Hospital
Location
Watford Rd, Harrow HA1 3UJ
Emergency Pathway Northwick Park Emergency Department
Contact us at Northwick Park Hospital • Paediatric Day Care Unit (PDCU): 020 8869 3131 Ward Manager and 020 8869 3437 unit • Paediatric Emergency Department: 0208 869 5090 • Paediatric inpatient ward (Jack's Place) • Carroll Ward
About the service
The specialist sickle cell and thalassaemia service at London North West cares for patients from birth and throughout adulthood both in hospital and in the community.
The team is made up of specialist nurses, doctors, psychologist and a social worker.
The team is based at Central Middlesex and Northwick Park Hospitals. Our community team is based at the Brent Sickle Cell and Thalassaemia Centre (BSCTC), on the Central Middlesex Hospital site.
The service provides:
• adult acute and community support services
• paediatric acute and community support services
• antenatal screening and follow up care
• neonatal screening and follow up care
• genetic testing
• psychology services
• a social worker for our patients
• a patient support group.
The service is also involved in:
• the North West London Haemoglobinopathy Managed Clinical Network (MCN)
• the National Haemoglobinopathy register
• education, training and research
• producing publications, DVDs and other multimedia resources
• providing a dedicated website for information and education of professionals and the general public about sickle cell disease and thalassaemia.
Clinics
All clinics take place at Central Middlesex Hospital.
Children's clinic
• every Tuesday afternoon
• 2pm-5pm
• Rainbow Children's Centre, paediatric outpatients, ground floor
• to book, change or cancel an appointment, please call 0208 453 2292.
Adults' clinic
• every Tuesday morning
• 9am - 1pm
• haematology department, second floor
• to book, change or cancel an appointment, please call 0208 453 2292.
Transcranial Doppler (TCD) ultrasound scanning clinic
• monthly on a Saturday
• haematology department, second floor.
• for children from two years old upwards.
• to change a TCD appointment, please call 0208 453 2275.
Information about your care
Emergency Care
• If you need emergency care, please go to the Emergency Department at Northwick Park Hospital.
• If you attend the Emergency Department and need to be admitted, you will be admitted to Drake Ward or to James Ward.
• Please note that there are no emergency or inpatient services at Central Middlesex Hospital. You should not go to the Urgent Care Centre at Central
Middlesex Hospital if you require emergency sickle cell and thalassaemia care.
Medial Day Care Unit
• Our adult Medical Day Care Unit is based at Central Middlesex Hospital.
• It is open during normal working hours (9am - 5pm, Monday to Friday), and is closed at bank holidays and weekends.
• It offers procedures such as:
o blood transfusions
o automated red blood cell exchange transfusions
o care if you suffer from an acute, uncomplicated, sickle cell pain crisis.
• You can come to the Unit for blood transfusion and other therapies if you have thalassaemia.
Medical Day Care Sickle Cell Pain Crisis Service
• The adult day care unit provides medical and nursing care between 9am and 4pm.
• To use this service you must call 0208 453 2562 for a telephone assessment with a nurse, and you must arrive by 11am. This makes sure that we have enough time to manage your pain crisis.
• If you are not well enough to go home after 4pm, we will make arrangements to admit you to hospital.
Inpatient care
• The inpatient care is provided on Drake Ward or James Ward at Northwick Park Hospital.
Caring for children In normal working hours If your child is unwell in normal working hours (9am to 5pm, Monday to Friday), please call the Paediatric Day Care Unit (PDCU) on 020 8869 3131 or 0208 869 3437.
You can take your child straight to PDCU during normal working hours, where specialist doctors and nurses will see your child. However, it is better to call us and let us know that you are coming so we can prepare for your child's arrival.
When you call, ask to speak to the nurse in charge and explain that your child has sickle cell or thalassaemia and is under the care of Dr Afif and Dr Cho.
Outside normal working hours
If your child is unwell outside normal working hours, please take your child to the Emergency Department at Northwick Park Hospital.
If your child needs to stay in hospital, they will be admitted to the paediatric inpatient ward, Jack's Place.
The Emergency Department, inpatient and day care sickle cell and thalassaemia children's services are located at Northwick Park hospital. Please do not take your child to Central Middlesex hospital for emergency sickle cell or thalassaemia care.
About the service
The specialist sickle cell and thalassaemia service at London North West cares for patients from birth and throughout adulthood both in hospital and in the community.
The team is made up of specialist nurses, doctors, psychologist and a social worker.
The team is based at Central Middlesex and Northwick Park Hospitals. Our community team is based at the Brent Sickle Cell and Thalassaemia Centre (BSCTC), on the Central Middlesex Hospital site.
The service provides:
• adult acute and community support services
• paediatric acute and community support services
• antenatal screening and follow up care
• neonatal screening and follow up care
• genetic testing
• psychology services
• a social worker for our patients
• a patient support group.
The service is also involved in:
• the North West London Haemoglobinopathy Managed Clinical Network (MCN)
• the National Haemoglobinopathy register
• education, training and research
• producing publications, DVDs and other multimedia resources
• providing a dedicated website for information and education of professionals and the general public about sickle cell disease and thalassaemia.
Clinics
All clinics take place at Central Middlesex Hospital.
Children's clinic
• every Tuesday afternoon
• 2pm-5pm
• Rainbow Children's Centre, paediatric outpatients, ground floor
• to book, change or cancel an appointment, please call 0208 453 2292.
Adults' clinic
• every Tuesday morning
• 9am - 1pm
• haematology department, second floor
• to book, change or cancel an appointment, please call 0208 453 2292.
Transcranial Doppler (TCD) ultrasound scanning clinic
• monthly on a Saturday
• haematology department, second floor.
• for children from two years old upwards.
• to change a TCD appointment, please call 0208 453 2275.
Information about your care
Emergency Care
• If you need emergency care, please go to the Emergency Department at Northwick Park Hospital.
• If you attend the Emergency Department and need to be admitted, you will be admitted to Drake Ward or to James Ward.
• Please note that there are no emergency or inpatient services at Central Middlesex Hospital. You should not go to the Urgent Care Centre at Central Middlesex Hospital if you require emergency sickle cell and thalassaemia care.
Medial Day Care Unit
• Our adult Medical Day Care Unit is based at Central Middlesex Hospital.
• It is open during normal working hours (9am - 5pm, Monday to Friday), and is closed at bank holidays and weekends.
• It offers procedures such as:
o blood transfusions
o automated red blood cell exchange transfusions
o care if you suffer from an acute, uncomplicated, sickle cell pain crisis.
• You can come to the Unit for blood transfusion and other therapies if you have thalassaemia.
Medical Day Care Sickle Cell Pain Crisis Service
• The adult day care unit provides medical and nursing care between 9am and 4pm.
• To use this service you must call 0208 453 2562 for a telephone assessment with a nurse, and you must arrive by 11am. This makes sure that we have enough time to manage your pain crisis.
• If you are not well enough to go home after 4pm, we will make arrangements to admit you to hospital.
Inpatient care
• The inpatient care is provided on Drake Ward or James Ward at Northwick Park Hospital.
Caring for children
In normal working hours
If your child is unwell in normal working hours (9am to 5pm, Monday to Friday), please call the Paediatric Day Care Unit (PDCU) on 020 8869 3131 or 0208 869 3437.
You can take your child straight to PDCU during normal working hours, where specialist doctors and nurses will see your child. However, it is better to call us and let us know that you are coming so we can prepare for your child's arrival.
When you call, ask to speak to the nurse in charge and explain that your child has sickle cell or thalassaemia and is under the care of Dr Afif and Dr Cho.
Outside normal working hours
If your child is unwell outside normal working hours, please take your child to the Emergency Department at Northwick Park Hospital.
If your child needs to stay in hospital, they will be admitted to the paediatric inpatient ward, Jack's Place.
The Emergency Department, inpatient and day care sickle cell and thalassaemia children's services are located at Northwick Park hospital. Please do not take your child to Central Middlesex hospital for emergency sickle cell or thalassaemia care.
Contact Sickle Cell and Thalassaemia psychology
Contact the Brent Sickle Cell and Thalassaemia Centre
• 0208 453 2050
• 0208 453 2052
Sickle cell disease and thalassaemia can have a profound impact on your life, and on your family. We provide a psychology service which is designed to support you and run seamlessly alongside your medical and nursing care.
We offer psychological services to everyone who uses our sickle cell and thalassaemia service. You will be fully assessed before you are offered any intervention, and we always follow up with you in the community.
Our aims are to:
• Reduce the suffering you experience as a result of your symptoms (including pain)
• Reduce your psychological distress by addressing any emotional problems
• Increase your ability to cope, by supporting you to learn appropriate and effective strategies
• Support you in following your medical treatment
• Improve your overall quality of life.
Information about your care
We provide:
• Psychological assessments for everyone who uses our sickle cell and thalassaemia service
• Psychological educational group work for children and young people
• Transition sessions for young people as they become adults
• Individual cognitive behavioural therapy (CBT) sessions for everyone who uses our service
• Problem-solving therapy for you and your carers, if you have them
• Neuropsychological assessments for everyone who uses your service
• Self-referral and drop in service
• Consultation and school liaison for any educational concerns
• Referrals to other psychology services, agencies, and voluntary organisations
• Training for health and allied professionals
• Research and development.
Jnetic clinics At our clinics, we:
• Run psychology outpatient clinics for children and adults once a week as part of the sickle cell and thalassaemia clinics at Central Middlesex Hospital.
• Offer additional psychology sessions by scheduled appointments
• Provide support for people who need day care and inpatient care at Central Middlesex and Northwick Park Hospitals
Ealing Hospital
The team at London North West/The Brent Sickle Cell and Thalassaemia Centre cover haematology care at Ealing hospital.
St George's University Hospitals NHS Foundation Trust
Red Cell and Haemoglobin Disorders Unit – for Adults with Sickle Cell Disease and Thalassaemia
The team of St George’s a Specialist Haemoglobinopathy Centre providing comprehensive healthcare for patients with sickle cell disease, thalassaemia and rare anaemias living in the local area, and also providing specialist services (including apheresis, psychology and pain management) for other hospitals within our networks. We form part of the west London Haemoglobinopathy Co-coordinating Centre, working with Imperial College Healthcare NHS Trust (Hammersmith Hospital and St. Mary’s Hospital) and London North West University Healthcare NHS Trust (Northwick Park Hospital, Ealing Hospital and Central Middlesex Hospital). We work in a multi-disciplinary approach, liaising with other specialties within the hospital to ensure each person is given the best care.
Social media
Please follow us on Facebook (Red Cell Pain), twitter (@PMPRed) and instagram (@PMPRed) for news and updates.
Haematology services at St George’s Hospital are now part of South West London Pathology which is a partnership set up by Croydon Health Services NHS Trust, Kingston Hospital NHS Foundation Trust and St George’s University Hospitals NHS Foundation Trust to provide a single, integrated pathology service across South West London and beyond.
For more information about South West London Pathology click here
Haematology and blood transfusion offer a comprehensive service to Trust hospitals and all other purchasers including GPs. There are five service laboratories which provide routine full blood counts and blood transfusion services 24 hours a day, 365 days per year.
• Diagnostic haematology performs full blood counts and related tests to aid diagnosis and treatment of blood cell and platelet disorders. Additional tests are carried to identify specific disorders e.g. infectious mononucleosis and immune cytopenias. Bone marrow aspirates are performed and reported. Disorders of blood production e.g. leukaemia, myeloproliferative diseases, are diagnosed referred to specialist haematologists for treatment including bone marrow transplant. There is an internationally renowned Aplastic Anaemia Service.
• Haemostasis performs coagulation screens pre-operatively and to investigate abnormal bleeding and initiates, monitors and controls anticoagulant therapy. There is a regional service for diagnosis and management of haemophilia and thrombophilia.
• Blood Transfusion stores and provides blood products on completion of appropriate pre-transfusion testing. Ante-natal anti D is issued in line with current guidelines. Hospital staff training in blood transfusion is co-ordinated and supervised.
• Leukaemia Diagnosis provides the regional service for diagnosis of leukaemia, lymphoma and immune monitoring using a number of specialist techniques.
Haemoglobinopathy Screening identifies disorders of haemoglobin production e.g. sickle-cell disease and thalassemia. Ante-natal testing to identify those at risk of severe genetic disease is carried out and referral made for counselling as appropriate.
Location
Lanesborough Wing, St Georges Hospital
Blackshaw Rd, London SW17 0QT
LHT - Local Haemoglobinopathy Teams
Chelsea & Westminster Hospitals NHS Foundation Trust
West Middlesex University Hospital
Location: The Haematology clinics are based in Outpatients 2 in the main hospital building opposite the main reception desk.
Chelsea and Westminster Hospital
Outpatient Clinic 4: Lower Ground Floor
Beta Cell Unit
Gazzard Day Unit: 2nd floor, Lift Bank B
AEC (Ambulatory Emergency Care Unit): Ground Floor, Lift Bank D
Haemotology is the branch of medicine that deals with diagnosis, treatment and prevention of diseases related to the blood. Both sites have haematology services which manage a wide range of disorders including:
• Anaemias (reduction in red blood cells or haemoglobin)
• Lymphomas (cancer of the lymphatic system) and leukaemias (cancer of the white blood cells)
• Myelomas (bone marrow cancer) and myelodysplasia (drop in number of healthy blood cells)
• Thrombotic (blood clots) and coagulation (ability of blood to clot) disorders
• Sickle cell
• Thalassaemia – we don’t see or treat thalassaemia disease but can advise on thalassaemia trait conditions
• Leucopenias (reduction in white blood cells)
• Haemoglobinopathies (genetic defects)
• Autoimmune blood
The team offer a variety of outpatient haematology and specialist clinics at both hospitals. At Chelsea and Westminster the team has rapid access to the Gazzard Day Unit for chemotherapy and to the Ambulatory Emergency Care Unit (AEC) for blood transfusions and other treatments. At West Middlesex, there is a rapid access facility for patients with a wide range of blood conditions. Both hospitals have dedicated inpatient ward for haematology patients
The team work closely with other hospital services to ensure patients have all of their needs met and are fully integrated with Cancer, Palliative Care, Pathology, Radiology and Surgery services which allows for rapid diagnostic investigations, treatment, and palliative support. We are part of the West London Haemoglobinopahty Coordinating Centre and work with specialist blood teams at Hammersmith Hospital.
Dr Ed Bataillard, Lead for Haemoglobinopathies at Chelsea & Westminster Hospital
Dr Natasha Wiles Lead for Haemoglobinopathies at West Middlesex University Hospital
The Haematology department is based in general outpatients, the Helen Donald Day Unit and Gade ward for inpatients
Lead for Haemoglobinopathies service is Dr Anna Wood
The Department also works with London centres for Bone Marrow Transplants and Plasma exchanges
Referrals / Appointments
Appointments are made following GP referral either directly, through the 2 week wait or through Choose and Book.
Occasionally appointments will be instigated by the Haematologists, liaising with the GP, following the discovery of abnormal lab results.
Outpatients – Outpatient Department
Inpatients - where level 1 service is provided – Gade Ward
Day Unit – Helen Donald Unit
Anti-Coagulation Clinics – Shrodells Unit
01442 454671
Sickle Cell Disease clinic First Friday of each month
Hemel Hempstead Hospital
Service / Department specialties
General Haematology
Haemato-Oncology (Adults only)
The Department also works with London centres for Bone Marrow Transplants and Plasma exchanges
Outpatients in covered by the team at Watford General Hospital
Referrals / Appointments
Appointments are made following GP referral either directly, through the 2 week wait or through Choose and Book.
Occasionally appointments will be instigated by the Haematologists, liasing with the GP, following the discovery of abnormal lab results.
Location
Outpatients – Seen in Pathology, Verulam Wing, Level 2
Anti-Coagulation Clinics – Pathology, Verulam Wing Level 2
The haematology team at ESH is an expanding team running a busy level 2B service. This means that we look after pretty much all types of inpatient chemotherapy, with the exception of bone marrow transplants and Acute lymphoblastic leukaemia.
The team comprises of four consultants and an associate specialist, with aspirations to have an SpR in the team within the next few years.
Treatments and services
Clotting Disorders
General haematology
Haemoglobinopathies
Oncology (Established Diagnosis)
Lead for Haemoglobinopathies service is Dr Emma O’Donovan
Crawley Hospital
Surrey and Sussex Healthcare NHS Trust provides emergency and non-emergency services to the residents of east Surrey, north-east West Sussex, and South Croydon.
Kingston Hospital NHS Foundation Trust
Kingston Hospital
Location: Maxwell Thorne Haematology Day Care Unit
Level 2, William Rous Unit
Kingston Hospital
The Haematology service is involved in the diagnosis and monitoring of patients with disorders of the blood and bone marrow, such as: sickle cell disease, anaemia, leukaemia and related blood cancers, clotting disorders and bleeding problems such as haemophilia.
Usingstate of the art technology the service offer the following routine investigations:
Full blood count
Reticulocyte Count
Erythrocyte Sedimentation Rate (ESR)
Other routine investigations include:
Blood Film Examination
Malaria
Infectious Mononucleosis (I.M) also known as a Paul Bunnell (PB) test
Haemoglobinopathy screening and investigations
The Haemoglobinopathy service focuses on the identification of disorders of haemoglobin production such as G6PD deficiency, sickle cell disease, thalassaemia and other haemoglobin variants
Lead for Haemoglobinopathies service is Dr Caroline Ebdon, Consultant Haematologist & Joint Clinical Lead, St Helier Hospital
Tel: 020 8296 2214/2216
Ashford and St. Peter's Hospitals NHS Foundation Trust
Clinical haematology services across West Surrey are linked into the St Luke's Cancer Centre at Guildford and also form part of the Berkshire & Surrey Pathology Services network partnership. There is a single weekly joint video conferenced MDT for haematological cancer and clinical haematology patients are treated within a portfolio of shared chemotherapy, transfusion and haemostasis management regimens. Outpatient, day unit and diagnostic services are provided at both Ashford / St Peter's and St Luke's / Royal Surrey sites. Inpatients with haematological disorders at St Peter's are admitted by the medical unit and supported by an in-reach specialist haematology service model. At St Luke's haematology inpatients are admitted to a dedicated oncology ward (Onslow Ward) where level 2 intensive inpatient chemotherapy can also be delivered if required. Each site has a CNS team including haematology, anticoagulation and transfusion specialist practitioners with pharmacy and palliative care liaison support. Lead for Haemoglobinopathies service is Dr Jissan Hussain
The service provides treatment for patients with malignant and non-malignant haematological conditions.
The treatments used at the centre are at the forefront of modern healthcare. As with all of services, treatments depend on individual cases. This will be discussed in great detail with every patient by one of our team once a diagnosis has been made.
We have a growing portfolio of clinical trials currently open.
General Haematology:
management of benign blood disorders.
Haemostasis and thrombosis: disorders of the blood clotting system.
Anticoagulation: management of patients requiring thinning of their blood.
Provision of blood products for transfusion.
Our main practical procedures are: administration of chemotherapy, bone marrow aspiration and biopsy, venesection and intrathecal chemotherapy.
All these services are delivered through a range of activities including Outpatient clinics, Day case care, Inpatient care (Haematology Level 2b), multidisciplinary team meetings and consultative advice to hospital and primary care colleagues. A full clinical and laboratory on call service is also provided.
Paediatric Involvement with the West London HCC Only - Bedfordshire Hospitals NHS Foundation Trust
Bedfordshire Hospitals NHS Foundation Trust
Bedford Hospital
Location
Bedford Hospital, South Wing, Kempston Road, Bedford, MK42 9DJ
Luton & Dunstable University Hospital
Treatments and services
Anti Coagulant
Clotting Disorders
General haematology
Haemoglobinopathies
Oncology (Established Diagnosis)
Location
Ward 19a – Haematology and Oncology
Partner Organisations
Welsh Networks
Cardiff Sickle Cell and Thalassaemia Centre
Location: Butetown Health Centre Loudoun Square, Butetown Cardiff CF10 5UZ
The South Wales Hereditary Anaemia Service provides specialist and comprehensive care to patients with a hereditary anaemia. Some of the types of anaemias that can be hereditary are:
Lead for Haemoglobinopathies service is Dr Jonathan Kell
Noah's Ark Children's Hospital for Wales (CHfW)
Location: University Hospital of Wales, Heath Park Way, Cardiff CF14 4XW
The Noah's Ark Children's Hospital for Wales is based at the University Hospital of Wales at the Heath Park site and provides secondary care for the children of Cardiff and the Vale of Glamorgan and tertiary care for children across Mid, West and South Wales.
Lead Nurse Kerenza Moulton
Scottish Paediatric and Adult Haemoglobinopathy Network (SPAH)
Glasgow Royal Infirmary, Glasgow
Location: 84 Castle St, Glasgow G4 0SF
Haematology is the study of the cause, diagnosis, treatment and prevention of diseases related to blood. It involves the production of blood and its components, such as blood cells, haemoglobin, blood proteins and bone marrow.
Haematologists investigate, diagnose and treat diseases such as anaemia, leukaemia and lymphoma. They also care for patients with blood-clotting abnormalities and are responsible for ensuring that blood transfusions are safe and available when they are needed.
Haematologists can be biomedical scientists and clinical scientists who work in laboratories as well as medical staff who work with patients in clinics and on the wards. They can be involved throughout the patient’s journey, from the first hospital visit, through laboratory diagnosis to treatment.
Hundreds of thousands of blood tests are done every day in the UK.
Treatments
- Haemostasis (Blood Coagulation)
Haemostasis is the human body’s response to blood vessel injury and bleeding. It involves a coordinated effort between platelets and numerous blood clotting proteins (or factors), resulting in the formation of a blood clot and subsequent stopping of the bleed.
- Blood transfusion is the process of receiving blood or blood products.
Transfusions are used for various medical conditions to replace lost components of the blood. Blood transfusion uses individual components of the blood, such as red blood cells, white blood cells, plasma, clotting factors and platelets.
Royal Hospital for Children, Glasgow
Location: 1345 Govan Rd, Glasgow G51 4TF
Royal Hospital Children & Young People, Edinburgh
Location: Edinburgh EH16 4TJ
The Haematology and Oncology service looks after children and young people with cancer, other lumps and problems with their blood. This includes conditions like leukaemia, brain tumours, bone cancers, kidney cancers as well as some rare diseases. We also look after children and young people with haemophilia, sickle cell disease and other conditions affecting their blood.
Aberdeen Royal Infirmary
Location: Foresterhill Health Campus, Foresterhill Rd, Aberdeen AB25 2ZN
Ninewells Hospital, Dundee
Location: James Arrott Dr, Dundee DD2 1SG
The Haematology team provides inpatient services at Ninewells Hospital and run Clinics and Day Unit at both PRI and Ninewells.
Patients are seen and treated for a wide variety of blood disorders both malignant
and non-malignant.
Many haematology patients are treated as day cases in this very active day unit
where patients are seen regularly for treatments such as blood transfusions,
chemotherapy and other intravenous therapies.
