Our mission is to support and oversee the safe, effective delivery of care for individuals living with sickle cell disease (SCD) and thalassaemia across West London.
As inherited blood disorders primarily affecting Black and minority ethnic populations, these conditions often require lifelong specialist care. Our goal is to promote clinical excellence, improve patient outcomes, and enhance the care experience by working closely with networks, specialist teams, and local healthcare providers. Through collaboration, we ensure clear care pathways and access to expert support.
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Sickle Cell Disease - The Final Frontier!
Even after more than 40 years of raising public awareness of sickle cell disease, extensive education and training of healthcare professionals and the development of specialist services, we’re still witnessing unacceptable standards in nursing…
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Girl, 13, suffered so much pain from disease, she couldn't play sport or go on holiday
Neriya-May Hall has had her life transformed by the use of ultrasound to administer blood transfusions and is now much less likely to experience a sickle cell crisis. A 13-year-old girl who suffered “so much pain” it left her unable to play sport…
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Two thirds of Londoners with sickle cell disease have a Universal Care Plan
Over 5,000 sickle cell patients in London now have a Universal Care Plan (UCP), helping to ensure they get the right care wherever they are in the Capital (16 September 2024). The UCP is an NHS service that digitally shares personalised care plans…